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  1. Home
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  3. Heather Guidone
Heather Guidone's picture
she/her

Heather Guidone

BCPA
Program Director
Center for Endometriosis Care
Country or state 
United States
Available to 
North America,
Europe
City 
Fee 
Languages 
English
Volunteer
No
Timezone 
America/New_York

Personal Details

Bio

Heather Guidone, BCPA is the Program Director of the Center for Endometriosis Care and an internationally renowned disease advocate and educator. She has focused on 'bench to beltway to bedside' efforts in endometriosis research facilitation, policy reform, education, patient-centered care and much more for nearly thirty years, but importantly, is also someone who personally struggled with advanced endometriosis, adenomyosis, and infertility. Those deeply lived experiences bring a unique perspective to her professional works and fuel her continued passion to effect change on the way the disease is researched, treated and publicly perceived. She lectures internationally on endometriosis, serves as a subject matter expert and member of various collaborations on the disease, consults for various research efforts, and has written/contributed to countless books, articles and publications on endometriosis, pelvic pain, womxn’s health, menstrual education, patient advocacy and engagement, and much more over the past three decades. She remains an active member of several organizations, task forces and editorial boards, continuing her tireless contributions to the global endometriosis and chronic pain communities. Her priority focus remains on reducing diagnostic delays and fighting for access to early and effective treatments for all; striving towards policy improvements; collaborative network building among multidisciplinary providers; ensuring stakeholder representation in order to improve outcomes for future generations; and creating space for the patient voice in all places where decisions are being made about endometriosis.

Current position (1)

Program Director

Center for Endometriosis Care

Degrees (1)
Patient Advocacy
Board Certified Patient Advocate
1988 to 2023

Presentations

Presentations (1)
Below The Belt Exclusive Congressional Screening, Washington, DC
  • All (2)
  • Videos
  • Photos (1)
  • Press information (1)
This speaker hasn't uploaded any videos yet.
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This speaker hasn't uploaded any one sheet yet.
What is Endometriosis? A new film documents the politics behind the under-diagnosed disease | Fingerlakes1.com

Books & Articles (2)

The Palgrave Handbook of Critical Menstruation Studies (Contributing Author)
Springer,
2020
Our Bodies, Their Business
Routledge,
2024

Expertise (15)

Healthcare
Endometriosis Pelvic pain Advocacy and Outreach Empowering Patients Advocacy Engagement Advocacy Health Gynecology Collaborative healthcare Policy Consumer Healthcare Legislative Advocacy healthadvocacy healthpolicies
Recommendations
Why choose me? 

Heather Guidone, BCPA is a dynamic, authoritative speaker who educates and empowers audiences.

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