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  1. Home
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  3. Lara Bloom
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Lara Bloom

CEO, Speaker, Advocate, Campaigner, Patient Expert
The Ehlers-Danlos Society
Country or state 
United Kingdom
Available to 
Global
City 
London
Fee 
Ask for pricing
Languages 
English
Volunteer
Yes

Personal Details

Bio

Lara Bloom is an inspirational keynote speaker who has spoken at multiple conferences, policy meetings, corporate and fundraising events and academic lectures worldwide, representing the patient voice with clear, concise, emotive and impassioned experience.

As a patient who was born with the genetic connective tissue condition Ehlers-Danlos syndrome (EDS), Lara was not diagnosed until the age of 24, after years of symptoms, chronic pain and frustration. Lara has transformed this negative experience into a positive by pursuing a career in patient advocacy and becoming an Executive Director in the non-profit sector.

Lara has a unique way of being able to inspire patients to manage symptoms through her positivity and passion. She demonstrates how to cope with the multi-systemic nature of an invisible rare disease, through her experience with holistic approaches and focusing on the importance of building a bridge between mental and physical health. Lara can share how she has used the power of the mind as a tool to overcome the physical pain, emotional trauma and complications that can be experienced living with a chronic condition.

Lara brings her emotion, dedication and wealth of experience to any event and can help inspire patients and educate academics and medical professionals. Lara understands the individual needs of an audience and can tailor a talk to suit specific needs and events.

Current position (1)

CEO, Speaker, Advocate, Campaigner, Patient Expert

The Ehlers-Danlos Society

Degrees (1)
BA Hons in Global Politics and International Relations
University Of London
2010 to 2014
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Books & Articles (5)

Lara's Mission Against Pain
Inspiring Woman of the Month
Living with Ehlers-Danlos Syndrome
Bushey Resident carries Paralympic Flame
When I walk Everything hurts - Woman takes on London Marathon

Expertise (16)

Health & Well-being
Leadership
Social & Political
Mental health LGBT+ chronic health chronic illness chronic pain Pain ehlersdanlossyndrome hypermobility raredisease Health Optimising Wellbeing Brain/Body Patient Engagement Advocacy
Recommendations
Why choose me? 

Inspirational speaker specialising in chronic, rare and invisible diseases and patient engagement.

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