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  1. Home
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  3. Julie Flygare
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she/her/hers

Julie Flygare

JD
Founder & CEO, TEDx Speaker, Award-Winning Author
Project Sleep
Country or state 
United States (California)
Available to 
Global
City 
Los Angeles
Fee 
Languages 
English
Volunteer
No
Timezone 
America/Los_Angeles

Personal Details

Bio

Julie Flygare, JD, serves as President & CEO of Project Sleep. Flygare is an internationally recognized patient-perspective leader, an accomplished speaker, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. On March 22, 2022, she delivered the TEDx Talk, “What Can You Learn from a Professional Dreamer?“

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting her current role as President & CEO of Project Sleep, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Current position (1)

Founder & CEO, TEDx Speaker, Award-Winning Author

Project Sleep

Degrees (2)
Art History
Brown University
2001 to 2005
Health Law
Boston College Law School
2006 to 2009

Presentations

Past talks (2)
Prescribing Social Support for Chronic Illness
Medicine X: Ignite! Talk, ePatient Scholar, Julie Flygare
Stanford University Medicine X
September 26, 2015
How a Patient Helped Define a New Clinical Endpoint in Narcolepsy
Patient Voice to Disruptive Innovations Conference
The Conference Forum
September 10, 2014
  • All (2)
  • Videos
  • Photos (1)
  • Slides (1)
This speaker hasn't uploaded any videos yet.
TEDxSDSU The Power of Sleep
TEDxSDSU The Power of Sleep
What can you learn from a professional dreamer? | Julie Flygare | TEDxSDSU
This speaker hasn't uploaded any one sheet yet.
This speaker hasn't uploaded any press information yet.

Books & Articles (8)

Wide Awake and Dreaming: A Memoir of Narcolepsy
Mill Pond Swan Publishing,
2012
Marie Claire Magazine: Eyes Wide Shut
I'm Not Looking to Be Saved: Why Shame is Worse than Illness
Expert Advisory Boards: A New Model for Co-Exploration
Narcolepsy: Let the Patient's Voice Awaken Us!
Introducing People-Centered Language to SLEEP
Narcolepsy and COVID-19: sleeping on an opportunity?
Living with Narcolepsy: Current Management Strategies, Future Prospects, and Overlooked Real-Life Concerns.

Expertise (19)

Healthcare
Leadership
Health & Well-being
PR & Communications
Education
Sleep Sleep Disorders Narcolepsy Empowering Patients Expert Patient Patient Advocacy Patient Centered Healthcare Patient Engagement Patient Experience Patient Narrative Patient Empowerment Storytelling Storytelling for Activism Healthcare Innovation
Recommendations
7 Audience
Show More
Why choose me? 

Let's talk patient-centered healthcare innovation, disability, storytelling, sleep & social impact.

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