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  1. Home
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  3. Haley James
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She / Her

Haley James

4x CEO/Founder, Advocate, Activist & Speaker
It's Haley James Media
Country or state 
United States (California)
Available to 
Global
City 
San Francisco
Fee 
Ask for pricing
Languages 
English
Volunteer
Yes
Timezone 
America/Los_Angeles

Personal Details

Current position (4)

4x CEO/Founder, Advocate, Activist & Speaker

It's Haley James Media

CEO, Founder & Designer

The Chronic Collective

CEO, Founder, Advocate, Designer, & Speaker

Health & Home

CEO, Founder, Advocate & President

Rise & Rally (Non-Profit)

Achievements (3)
The HEART Act Passed

Haley James gave presentations, facilitated meetings, advocated for, & worked with Congressman Swalwell's office to get The HEART Act, a bill created to help those with rare diseases get access to treatments & care they need more easily, passed & approved into law in December of 2022.

Certificate Of Proclamation From The City Of San Francisco

Haley James was presented with the official Certificate of Proclamation, declaring October as Dysautonomia Awareness Month in the city as a recognition of her advocacy efforts.

Recognition Of Advocacy Efforts By City Hall Lighting

Haley James was given recognition for her advocacy efforts by San Francisco Mayor, London Breed, who had San Francisco City Hall lit up turquoise for Dysautonomia Awareness Month.

Degrees (6)
Masters in Interior Design
Staffordshire University (National Design Academy)
2017 to 2019
Certificate in Chemicals & Health
Johns Hopkins Bloomberg School of Public Health
2020 to 2021
Certificate in Interior Decorating
Ashworth College
2016
Bachelor's in Interior Design
San Jose State University
2012 to 2016
Certificate in Environmental Law & Policy
University of North Carolina at Chapel Hill
2020 to 2021
Certificate in Environmental Health
University of Arizona
2020 to 2021

Bio

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My Story & Why

My journey as a speaker began the same as many speakers do—long before they are speaking anywhere—with the hardship that they will later come to speak on. For me, that hardship happened in my early 20s when I became very sick with multiple chronic & rare conditions.

For 10 years, I was fighting for my life, relying on a feeding tube & infusions to survive. I spent many years advocating for myself in the doctor's office & with insurance. Witnessing & experiencing how broken the system was brought me to a place where I wanted to expand my advocacy efforts. I knew I could speak & share my story to try to make others feel less alone, bring awareness to the problems, & help others get the help they need—so I did.

Starting with just a few people here & there, my speaking engagements gradually expanded as I became more involved in disease-specific organizations, hosting statewide support groups, speaking at online events & eventually presenting to members of congress.

While I loved being able to advocate in those ways, I knew that I didn't want to stop trying to find more ways to help others like me. I didn't know where to start though, so I reflected on all the hard things I had gone through & tried to pinpoint what had helped me most. I realized the thing that in many ways saved me—was hearing people share their stories & experiences online. Through these other patients, I was able to get to the right doctors, get diagnosed, & feel less alone on my journey.

Inspired by these creators, I decided I wanted to pay forward all that they had given me & create something to help all those going through what I had gone through & was still going through. While trying to figure out what I could do that would help, I came up with a formula that helped: Pain → Passion, Purpose, Positive Impact. I came up with this when reflecting on each pain point I experienced & asked myself how I could use my passions & talents to make a difference. What purpose could it serve, & how can it help make a positive impact on people most?

I applied this formula again & again, leading to the creation of 3 businesses, a non-profit, 4 podcasts, multiple YouTube channels, Instagram accounts, online stores & more!

This formula didn't just help me. I watched as those I shared it with were able to use it to create lives they loved & found ways to help others too! It became clear to me this message was needed.

This has brought me here now, where I speak about my journey - all the parts of it: the mental health, the chronic illnesses, the rare diseases, advocacy & activism, learning to own your story, overcoming adversity, entrepreneurship & how to turn struggles into strength to create a life you truly love, filled with passion, purpose & positive impact!

I hope that through these talks we are able to inspire, empower & equip others on their journey too!

I would love nothing more than to come alongside you and make a difference in people's lives & the world - together!

Why We Should Work Together

Do you know the best way to engage an audience? How about the best way to teach someone something they’ll remember? What about the best way to inspire and empower others? The best way to make a meaningful connection and impact? It’s through stories—vulnerable, authentic, and genuine storytelling that connects us all at a deeper level. But sharing our deepest struggles, mistakes, and vulnerabilities isn’t always easy, especially with a room full of people you may not know. That’s why finding a speaker who can do that can be so difficult. Even though it may be harder to find someone willing to do this, it’s in this sharing of stories that we create the deepest connections and leave a lasting impact on others.

I wholeheartedly believe in the power of sharing stories because I’ve experienced its transformative effect in my own life. When I was going through the darkest and most challenging times, it was the stories of others—of their triumphs, their hurt, their joy, and their resilience—that helped pull me through.

As I journeyed through my own hardships, I discovered that speaking on these topics became a way for me to cope, make sense of my experiences, and channel my story into a greater purpose—to help others navigate their own challenges and lives.

So, at the core of every topic I speak on or teach, you’ll find a genuine desire to use my story in a way that will inspire, empower, educate, and equip others on their own journey—whatever that may be. Whether it’s chronic illness, passion, purpose, positive impact, overcoming adversity, learning to own your story, or one of the other topics I speak on that you can learn about below, I want to be here to help you put on an event, a seminar, a panel, a podcast—something that matters and can make a difference. If you’re looking for someone to join you in creating a meaningful impact on your audience, I’d be honored to partner with you to change lives through the power of stories. Let’s connect and make a difference together!

Presentations

Presentations (8)
Turning Pain→ Passion, Purpose & Positive Impact

We all face struggles and hardships that often leave us questioning our purpose and direction in life. But through my journey, I discovered that pain doesn’t have to be the end—it can be the very beginning of something meaningful. I developed the Pain → Passion, Purpose, Positive Impact formula to help me and others transform pain into purpose, and in this talk, I’ll share how you can do the same.

It's Not Just The System: Why Healthcare Won't Change Until We All Take Steps To Change It

It’s really easy to blame things on the system, and it’s true - the state of the healthcare system is less than ideal. It can even be straight-up harmful. However, there’s a piece of this puzzle that’s missing, and we need to recognize and own it - as patients, we are part of the system, too. When we realize that part of the reason doctors don’t know how to diagnose and treat chronic illnesses might be because not enough of us are truly honest and straightforward about our experiences, we can become advocates. Now, it isn’t our responsibility to fix the system, and nobody is entitled to our emotional labor - but the system can’t change unless all parts of it (patients included) are taking steps to make it change. Let’s change it together.

Turning Obstacles Into Opportunities: Turning Your Greatest Struggle into Your Greatest Strength

Life presents a mix of daily tests and exceptional trials. From minor annoyances to life-altering hurdles, we navigate uncharted territory. While minor roadblocks frustrate us, major challenges like loss or illness reshape us. We often can't anticipate our response until faced with them. It's a matter of when, not if. Amid these monumental challenges, how will you react? In my journey, severe health issues upended my plans. I had two choices: succumb to misery or turn adversity into opportunity. I chose the latter, reframing my mindset to envision a new life. Struggles equipped, not disqualified me. This talk empowers you to transform obstacles into launchpads for a joyful, purposeful life.

Self-advocacy: How To Take Control & Get In The Driver's Seat Of Your Life

There are two types of people - drivers and passengers. Passengers sit idly by on someone else’s journey, waiting to arrive at the destination. Drivers, though, are in their own lane - playing an active role in where they’re going and making conscious decisions for themselves along the way. Let’s uncover what it is that makes someone a driver rather than a passenger - living with intention, realizing that we can’t control everything (but we can control how we respond), and knowing how to advocate and make impactful decisions for yourself. Someone’s gotta make the playlist for this road trip through life, and it should be you!

The Power Of Ownership: How To Own Your Past So You Can Create A Purpose-Filled Future

Genuine ownership of our stories gives us the power to shape our futures. It doesn't erase the past; instead, it allows us to draw lessons and inspiration from it. By acknowledging our past with its challenges and triumphs, we develop a stronger foundation for the journey ahead. Our narratives influence how we perceive ourselves and our capabilities. When we actively own our stories, we dispel the limitations we once imposed upon ourselves. I'm here to guide you through this transformative process. In this talk, I'll provide you with tools to truly own your past and the stories you tell. By doing so, you'll be equipped to construct a purpose-driven future that isn't hindered by past constraints. Embrace your story, rewrite your narrative, and journey forward with newfound strength and determination.

The Art Of Choice: How Your Mindset Can Empower You To Create The Life You Want

Life often hands us battles we didn't choose, but our reaction remains within our control. Shifting to a mindset of active choice empowers us. Amid unexpected challenges like illness, perceiving responses as choices unveils our agency. This perspective shapes how we work, connect, and live. Embracing this outlook led me to transform my life. Choosing our reactions, even in adversity, is pivotal in crafting our futures. I'll guide you in understanding this concept, unveiling personal power. Learn to align choices with goals and values, regardless of life's battles. Mastering the art of choice empowers you to shape an authentic and fulfilling life!

Empowering Patients: Taking Ownership Of Our Health And Healthcare

The healthcare system's flaws are evident, from long wait times to high costs. While systemic issues exist, we as patients play a role too. Acknowledging our responsibility is crucial. Doctors struggle with chronic illnesses due to incomplete patient information. Being candid about symptoms and experiences can improve care. We must advocate for ourselves and others by asking questions, seeking opinions, and sharing stories. While not solely responsible for fixing the system, change requires collective effort. Let's unite to demand better care, be open with providers, and raise awareness about healthcare challenges. Together, we can create a high-quality, accessible system.

Custom Presentation

Have a specific talk idea in mind? Great! If you have a topic you want a presentation on, she will work with you to figure out how to create the best presentation to support your audience!

  • All (3)
  • Videos
  • Photos (1)
  • Slides (1)
  • One sheet (1)
This speaker hasn't uploaded any videos yet.
The Basics Of Dysautonomia With Dr. Brent Goodman | EP. 01 - dys-FUNCTIONAL Podcast
dys-FUNCTIONAL Podcast
This speaker hasn't uploaded any press information yet.

Expertise (14)

Health & Well-being
Leadership
Design
Education
Social & Political
Finding Passion and Purpose Chronic Condition Advocacy Accomplish Your Goals Rare Diseases IVIG chronic illness dysautonomia Advocating for people with disabilities
Recommendations
Why choose me? 

Advocate speaking on chronic illness, passion, purpose, positive impact & creating a life you love!✨

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